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Content last updated: 8-2001
Those with hearing and balance disorders know that many extremely troublesome conditions go undiagnosed. A very important basic activity is to correlate the findings on autopsy in the inner ear with clinical symptoms.
To this end, there is a nationally supported network of laboratories throughout the country. For patients who have well characterized ear conditions and who indicate a willingness to have their inner ears harvested at the time of death, a system has been set up to collect and process the temporal bones.
The National Temporal Bone Registry website is at https://www.tbregistry.org.
We fully support this effort and encourage our patients to consider temporal bone donation.
A pamphlet about this, That Others May Hear, can be obtained from the NIDCD National Temporal Bone Hearing and Balance Pathology Resource Registry, Massachusetts Eye and Ear Infirmary, 243 Charles St, Boston MA 02114-3096, or by completing the electronic form at https://www.tbregistry.org/body/contact.htm.
The telephone number for the registry is 800-822-1327; The TDD/TTY: is (888) 561-3277